Caring for a loved one with a serious illness can be exhausting and challenging - and may be one of the most rewarding things you'll ever do. You might not know what to expect, or just what to do, but you should be aware that there is help available to you. There is a famous quote by Plato that says, “Human behavior flows from three main sources: desire, emotion and knowledge.” We want to help our loved one because we love them and knowing more about the disease, knowing more about what resources you have available to you is key. Below is a list of helpful websites to help you through your journey.
Information, resources and support groups for persons living with amyotrophic lateral sclerosis, also known as Lou Gehrig's Disease, and their loved ones.
Information, resources and support groups for persons living with Alzheimer's Disease/Dementia and their loved ones
Information and resources for persons living with cancer and their loved ones.
Information and resources for persons living with diabetes and their loved ones.
Information and resources for persons living with heart disease and their loved ones.
Information and resources for persons living with pulmonary disease and their loved ones.
Information and resources for persons living with arthritis and their loved ones.
Healthcare Provider Associations
Advocates on behalf of Ohio not-for-profit providers serving older adults.
Represents the interests and concerns of home care agencies, hospices, home care aide organizations, and medical equipment suppliers.
Represents hospice and palliative care programs and professionals throughout the United States.
Represents Ohio nursing facilities, assisted living communities and intermediate care facilities for the mentally retarded (ICF/MR).
Represents 169 hospitals and 18 health systems throughout Ohio.
Promotes and protects nurses, the nursing profession, and those who receive nursing care.
Represents Ohio osteopathic physicians, 11 hospitals that are members of the Ohio Osteopathic Hospital Association, and the Ohio University College of Osteopathic Medicine (OU-COM).
Represents 20,000 Ohio physicians, residents, medical students and practice managers.
Health Insurance Information
The official U.S. Government site for the Medicare program.
Ohio administrative agency responsible for regulating the insurance industry.
Free, statewide discount prescription assistance program. Ohio residents can download a FREE card and locate participating pharmacies.
The Ohio Senior Health Insurance Information Program (OSHIIP) provides free health insurance information and services to Medicare beneficiaries and the people that care for them.
Caregiver Support and Resources
Bobby’s Books is a program that uses books to help children and adults deal with difficult issues. Using children's literature as a springboard for conversations will give kids the chance to express their feelings and tell their own stories.
Caring Connections holds resources for patients, caregivers, employers and communities seeking compassionate end of life experiences.
An organization idedicated to addressing the needs of families and friends providing long-term care at home.
MyCareCommunity was created with caregivers in mind – to help make the challenging, yet rewarding, experience of providing care to a loved one a little bit easier. It includes free tools and resources to provide you with the information you need to be a more educated caregiver.
Educates, supports, empowers and speaks up for the more than 65 million Americans who care for loved ones with a chronic illness or disability or the frailties of old age.
ODA functions as a clearinghouse for programs, services and information for older Ohioans and their caregivers.
DODD functions as a clearinghouse for programs, services and information for Ohioans with developmental disabilities and their caregivers.
This link will take you to the Bobby's Books links page which has an exhaustive list of organizations dedicated to serving children who have been touched by illness.
This link will provide you with a variety of resources and information on legal, planning, grief, caregiver issues and funeral planning.
dedicated to helping people talk about their wishes for end-of-life care.
Too many people are dying in a way they wouldn’t choose, and too many of their loved ones are left feeling bereaved, guilty, and uncertain.
- See more at: http://theconversationproject.org/about/#sthash
Dedicated to helping people talk about their wishes for end of life care. Too many people are dying in a way they wouldn't choose, and too many of their loved ones are left feeling bereaved, guilty and uncertain.
Dedicated to providing free emotional support, education and hope for people with cancer and their loved ones. Locations in Columbus and Cincinnati.
The Hospice Action Network (NHPCO HAN) is dedicated to preserving and expanding access to Hospice care in America connecting advocates with one another and providing them with the tools they need to fight for the hospice cause at home, in Washington, and online.
National Association for Home Care and Hospice advocacy site informs you of issues impacting the home care and hospice industries and how to get involved.